Early in the new year, I went back up to Peterborough clinic. Not to see the O/T though, this time. I had a specialist appointment with their 'doctor with a special interest' in CFS/ME.
He was somewhat horrified that I'd never been diagnosed by a specialist, so we went through a whole pile of questions/symptoms. I tested out as mild/moderate on pretty much everything except IBS, which I am very happy not to suffer from. ('Mild' means you have the symptom. 'Moderate' means it becomes worse on exertion, or that you cannot work because of it. 'Severe' means you are housebound or bedbound due to the symptom).
We also went through the long list of supplements that I take daily. I have to admit: I was really hoping that he would tell me that half of them were useless. That I could safely stop taking them with no effect on my health. Unfortunately, he was enthusiastic about most of them, and even suggested another, additional one. Darnit. Those supplements are probably my biggest expense outside the mortgage and household bills.
He also suggested other things that I might want to talk to my GP about. But this post seems long enough, so I'm going to leave it here for now, and come back to it another day.
Tuesday 31 January 2012
Sunday 29 January 2012
Nudge, nudge
Quite a few people have nudged me over the last week or two. "So, you know that other blog you started...?" Ummm, yeah. That would be this blog, here, wouldn't it?
I said I wanted this to be a chronicle of my recovery - and I do! It has to be said, however, that I started writing here in a fit of optimistic enthusiasm, prompted by my first visit to the ME/CFS clinic in Peterborough. I was determined: it was the start of a new era, a corner turned, the magic bullet was found, and it was going to be improvement after improvement, all the way, from here on in.
Of course, things don't work quite like that. I've been up and down, just like anyone else. Christmas was most enjoyable, but hard work - driving 200 miles each way to visit my parents, plus socialising, eating too much, staying up late, getting up late, and generally trying to shoehorn rests in around another family's schedule. It's probably safe to say that the weeks before Christmas were actually very hard - I know I spent a lot of time on the sofa - and that the recovery from Christmas was slow.
I didn't want my first post back to be a giant whine-vent-whinge session. And it's not. But it's not all wine and roses, either. I'm here. I've been resting. Energy levels have been *generally* improving. But slowly.
And I'll try to post more regularly from now on.
I said I wanted this to be a chronicle of my recovery - and I do! It has to be said, however, that I started writing here in a fit of optimistic enthusiasm, prompted by my first visit to the ME/CFS clinic in Peterborough. I was determined: it was the start of a new era, a corner turned, the magic bullet was found, and it was going to be improvement after improvement, all the way, from here on in.
Of course, things don't work quite like that. I've been up and down, just like anyone else. Christmas was most enjoyable, but hard work - driving 200 miles each way to visit my parents, plus socialising, eating too much, staying up late, getting up late, and generally trying to shoehorn rests in around another family's schedule. It's probably safe to say that the weeks before Christmas were actually very hard - I know I spent a lot of time on the sofa - and that the recovery from Christmas was slow.
I didn't want my first post back to be a giant whine-vent-whinge session. And it's not. But it's not all wine and roses, either. I'm here. I've been resting. Energy levels have been *generally* improving. But slowly.
And I'll try to post more regularly from now on.
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